Shall we get up to speed on the shit show starring moi?
My scans showed progression on my spine to another central area- the reason I am limping and why it hurts to walk.
We decided to check in with Georgetown – despite the fact that otherwise, my medicine is working elsewhere.
He is BFF with Sloan and knows of a phase one trial that I would be a candidate for. He ordered another liquid biopsy to determine if I still have Ros-1 or if another cancer is chiming in. The results from that biopsy will be back on or by 11/28/2022.
If I am still showing my mutation then I have some options:
- Continue with the chemo and pill since it is keeping the rest of my body stable.
- Get on the phase 1 trial which is showing promising hope for the other dying people
Now, for option 2, time is ticking in the sense that I would be able to “get in” now, but at some point in the next few months (unknown but likely 1-2) I will not qualify.
Here is what I picture my decision is like…
