Again, not sure why the camp or the hospital calls go directly to voicemail, but it did! Thankfully I had hubby’s cell when the dr. called to report on today’s findings.
In short, I needed to have the following things in order to get on the ONE drug they believe will help me.
- I needed to show measurable growth. That means, the cancer has to be increasing in size. Once a thing I never wanted, now it is all I can think about if I want to get better.
- I also need to have a tissue biopsy (from the lung tissue- cancer cells) CONFIRM that I have the Ros-1 mutation. *Note, never has Ros-1 been able to be confirmed on tissue samples. It has been shown twice on blood samples, but that is not what they want.
- No Brain Mets (no brain tumors)
- Normal size heart
- Overall healthy…for a dying person.
Without #1, they do not care about 2-5. Without 2, they don’t care about 1,3,4,5.
Well, this evening, they said I do not have #1- however, they will still perform the lung biopsy in case they are either wrong about #1 OR my first doctor was right- in the thought that I am indeed getting worse.
So, today is a 20.